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Mind of a Liver donor : Confirmation

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Jan 7th, 2009
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From a maybe liver donor, a phone call made me into a liver donor.

There’s a stark difference between waiting and testing for a match, then having the date set for the surgery on the 7th and going into the hospital tommorow. Other than a phone call, nothing has happened related to donating my liver so I will delve into my mind for the challenges that made themselves opaque to the matching reality.

The greatest worry I have is for my dad. This isn’t an attempt at sounding noble. In any way you look at the current situation, he’s the one with the information booklet 10 pages long with possible complications of the surgery and its follow up process. On a pessimistic day, I think about one of the complications killing my father – plenty of them are capable of doing so though slim in chance. In a nightmare twist, I would awake from my surgery to find my intentions to breathe healthy years to my dad’s life had in fact, sucked the precious remainders dry. His wants and thoughts forever gone and mine forever changed. This thought is few and far apart – it was all jumbled pieces of fear that didn’t quite come together to form a horrendous picture as illustrated.

It may be a few words, but the previous paragraph took solid resolve to write. The complications hurt too much to spotlight them in my imagination. At the beginning, I wanted nothing more than to shove it all into a dark corner to allow for an ignorant security of success. Yet, the resulting comfort isn’t worth it – I would rather flirt with brood and anxiety so that when I talk to my dad before the surgery, I am aware of the consequences so that I better decide what we share.
Now onto I, I am not so selfless I don’t worry about myself through this process. Yet, I feel this shield of invincibility as a Med student, that the diseases of the textbooks and lectures are for the others and statistics, unable to touch the one who studies it. Ah, I’ll be fine, no need to write on.

There is something inevitable to liver donors, and that is a great big scar across my abdomen from the cutting open of it to take the right lobe of my liver. In an interesting correlation, the scar in most cases happens to be an L, as if to symbolize that it was all the Liver. But, each scar type is unique for each surgeon, it happening to be their pride and joy. After some research, I have found a surgeon who makes scars coinciding with the initial of my name. Now’s the time to look into his competency and request that he scar me for life.

EDIT: Cruel twist of events. I got a phone call an hour after I writing this up. Previously, it was a consultant nurse who confirmed everything was a-OK to go, but the consultant doctor was unhappy with my splenomegaly. (Note: Somethingmegaly = that something has been enlarged abnormally, for example a penismegaly is when a penis erects upon a gentle breeze upon the pants.) Further investigations showed that I had recently been found to be infected with Epstein-Barr virus and tonsilitis. (Well actually the second was really my complaining that it felt like I was sand-papering my throat with my spit whenever I swallowed – this led to tubes being stuck down my throat and my nose – yay…)

I’ve made my way to the hospital again… Ah bleh, today hasn’t been fun. I was given an IV drip of saline to hydrate me for the CT scan (certain doctor’s prefer their patient hydrated). Right now, I would call it a  discomfort, but when the nurse first administered the needle she missed my blood vessel (later she insisted she hit the vessel but it burst) and left me be in my bed. About 20 seconds later, I started to squirm in pain that felt like someone was stabbing needles in and out of me along my forearm. The NZ culture kicked in, and I thought I’d ‘man’ the pain but after 5 minutes of jostling around I looked down to see my forearm had gone huge, looking nearly twice the size of its counterpart (my right forearm).  The sorry nurse saw it as I walked down the corridor, and fixed me up.

18 Comments

  • jy

    The last section adds a little laughter to this whole post, although I see that my comment might be inappropriate. I remember from watching “Shawshank Redemption” and the theme of hope. They first start off with saying that “Hope is a dangerous thing,” but through the progression of the movie it shows that “may be hope is the best of things.”

    As medical students we are given a certain outlook into how false hope can be extremely detrimental, because this world is just that unpredictable. But may be hope shouldn’t be deemed in such a negative light. Instead of seeing it as an act of lying to preserve our sense of conviction or predilection for positive outcomes, it should be seen as fostering this inner-strength all of us humans possess that is not only put to the test when hardship strikes but even catalyzed to grow phenomenally when forced to stare at our own demise.

    Although the day the Earth stood still is an absolute bummer of a movie (unless if you think Keanu acting as a saviour is sooo sexy) it makes a good point about the “precipice” needing to be present for any sort of active change to occur.

    My dear friend, my heart and soul will be with you during this tumultuous and foggy times. I hope with my whole heart and soul for the smooth and quick surgery and recovery; and for now specifically, your recovery from tonsillitis and this EBV!

    PS good on you for being such a KIWI bloke! I’m guessing that you were liking the whole Popeye look lol (he has huge forearms)

  • Dr Month

    I sense lingering thoughts from a Year 13 English essay for Shawshank Redemption – the one where you smudged the director’s name on the exam paper with your spit to cover up the fact you forgot his name and felt that would surely fail you.

    Prof. Google tells me precipice is a huge vertical cliff. Hm… huge vertical cliff + active change + stare at our own demise = jump off … the cliff?

    Excellent advice!

    I do appreciate your caring, thanks, really.

    PS Kiwi bloke? Haha, I’m as far transformed into a Kiwi bloke as the kiwi bird can fly.

  • susu

    YAYYYYYYYY someone is back and alive and well!! yay yay yayyyyyyyyy!! :D :D :D shall await new post.

  • Dr Month

    YAYYYYYYYYYYYYYY thanks!!!

    Ok, that doesn’t feel right… and I’m typing the phrase. Your bubbliness is hard to match susu.

  • Michelle

    Hello

    I was reading your note and was wondering if you could tell me more about your experience. My Dad has end-stage liver cirrhosis. I want to be a live liver donor. How long was the process? From when you decided to be a donor to actually having the procedure. I feel like we are running out of time. They are telling me it could take up to a year…Yet the doctors are telling me he does not have much time. Where did you start. What test did you do? How is everything now? How did you feel after surgery? Can you please help me?

    Scared and confused,
    Michelle

  • Lisa

    Michelle–I donated 65% of my liver for my mom in Dec 2004 at Mayo Clinic in Rochester, MN. The testing began for me in August 2004 but they can speed up the testing if necessary. They do a lot of tests to confirm you are completely healthy, mind and body. The scar is not an L across the abdomen, at least not in my case.

    Lisa

  • Malik Muhammad Junaid

    Dear all,

    I want to draw you kind attention towards a case of liver cirrhosis patient in Pakistan and request you to
    take personal interest in it to find a way out in which our patient can be operated and get the liver transplanted.
    I am very much hopeful that we will together with your help and by the will of God, be able to save a precious life.

    She has very limited living resources and cannot bear the huge expenses for this surgery, Therefore we are looking for some sort of financial assistance for her transplantation surgery.

    I would like to also state that the suffering patient is 22 years old enthusiastic girl and inspite of all her illness she is studying
    mathematics at master level in a local university.

    I am very mush looking forward for help and guidance from you guys in this regard.

    Please if anyone knows any way in which we can get help for her please respond to this message or just write back to me or call me at the number below.

    with kindest regards,
    Malik Muhammad Junaid
    Distributed and Parallel Systems Group,
    University of Innsbruck
    6020 Tirol, Austria.
    Ph #: 0043 650 9101651

  • Dr Month

    Michelle – sorry it’s taken so long for me to reply to you, this site had been lost through my mind since late March to the point I had to hack into my own account here as I didn’t know my password.
    This information hopefully will not help you (meaning that I hope you have sorted everything out) but with the inkling of the possibility it might: Start with getting tested as a donor (make sure you take your dad’s medical history to the hospital – even better if your at the hospital taking care of your dad) – that’ll prompt the doctors to hurry up all the test results.
    After the surgery is physically as unpleasant as an experience I can remember- but mentally – you feel fantastic knowing what you did.
    Any other questions, ask away!

    Lisa – thanks for your input! If your still around, tell us about the scar – always felt that it’ll have a much dire consequence on a girl than a boy.

    Malik – Again, I hope this isn’t too late. I have almost non-existant experience in what your asking help for, other than back at high school – a classmate needed a bone marrow transplant and was in a similarly financially deprived situation as you have discussed.
    We collectively (with the help of everyone in our high school year) fundraised $1000 for her – not enough, but surely a positive step. So I suggest that you reach out to all the communities your patient is part of and personally affiliated with – Uni / church / sports – and hope for an empathetic response. The normal living conditions between NZ and Pakistan however probably cannot be compared on so many levels – but when compelling to the human spirit – I hope you get a similar response.

  • Sam Fisher

    Hey,

    Do you have the first year lecture notes and slides, I haven’t studied biology and chemistry and three years, this is going to be an uphill task so I thought I might as well start in the holidays ?

    I know it seems unfair that I’m askin this but if you knew how far behind the rest I would be without this it wouldn’t.

    Cheers

    Sam

  • Dr Month

    Sam, leave your e-mail. I do have most lectures and even audio for some of the lectures. Will be happy to send it to you

  • K

    Well if he wont leave his email, then i could definately use all the help to for next year, if you dont mind :)

  • dilini

    Dear doctor,
    My father is suffering from cirossis. His liver is badly effected. He is now under meditation. Please tell me whether this can be cured? worst to worst what is the solution for him give his life back??? Please reply

  • inner mind

    I was totally impressed from this blog because good topic WITH GOOD COLORFUL blog, great picture gallery and useful information for the suitableness of the future. Keep it up man.

  • Ramon Briston

    Interesting website, i have bookmarked your site for future referrence :-)

  • modymourburge

    Your blog keeps getting better and better! Your older articles are not as good as newer ones you have a lot more creativity and originality now. Keep it up!
    And according to this article, I totally agree with your opinion, but only this time! :)

  • Antoine Evans

    I really like when people are expressing their opinion and thought. So I like the way you are writing

  • Stefstar

    Here I am commenting again. Twice in one night! Jeepers!:)

    Just thought I would say, I really admire your openness and honesty. I have no doubt you will make an amazing, compassionate Dr.
    Which field do you plan on going into btw?

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